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The lived experience of parents with children with genetically solved developmental and epileptic encephalopathies : a thesis presented in partial fulfilment of the requirements for the degree of Doctor of Clinical Psychology at Massey University, Wellington, New Zealand
(Massey University, 2021)
Parents of children with developmental and epileptic encephalopathy (DEE) are at high risk of developing mental health difficulties due to caregiver burden and the unpredictability of seizures. Identifying genetic pathogenic ...